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Innolyst, Inc.

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Innolyst brings together patients, foundations, researchers and industry to collaboratively push forward treatments for disease. The Crossroads suite of products allows the community to:

identify and validate genes that may be implicated in disease
capture patient data for clinical trial recruitment and post market surveillance
enable research organizations to share funding data to avoid duplicate efforts

By providing collaborative solutions that enable pan-disease analysis of genes and patient populations, Innolyst is spurring collaboration that could result in better treatments - faster.

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Newsflash

First international registry for congenital muscular dystrophy launched

Cure CMD, a nonprofit advocacy group, launched in mid-August the first international registry for CMDs that will capture data on these diseases. Coordinated by Emory University School of Medicine’s Department of Human Genetics, online help and genetic counsellors will be available to registrants and their families. The CMD International Registry (CMDIR) will soon be available in French, German, Italian and Spanish, although the genetic counselling services will only be offered in English, with the option of a referral to a genetic counsellor or neurologist in the registrant’s home country.

DuchenneConnect Celebrates One Year Anniversary

Middletown, OH January 22, 2009: Parent Project Muscular Dystrophy (PPMD), the largest non-profit organization in the United States focused on finding a cure for Duchenne muscular dystrophy (Duchenne), announced the one year anniversary of DuchenneConnect, a central online arena linking the resources and needs of the Duchenne and Becker muscular dystrophy community.