Individuals who become active members of NBS Connect will benefit instantly in numerous ways. They will gain access to a central hub of information and tools allowing them to make more informed healthcare decisions. Disorder specific education materials, recipes, interactive health tracking systems, and “Ask an Expert” tools will help empower individuals to become more active members of the care team. NBS Connect also offers information about the latest research and clinical trials by working closely with industry and academia while protecting the privacy of all participants. Registrants will become part of a community with the ability to connect with other individuals throughout the country that face the same daily challenges.